Monday, June 8, 2009

Reflections on Arnie's Journey

We're writing from our family room in Saskatoon. We're home!!!
So much has happened over the past two weeks. Here's a thumbnail sketch.
  • David & Amy-Leigh flew to Seattle for a 4 day visit at the end of May. After a busy year at university and several performances with the Fireside Singers, they were definitely ready for a vacation. We were thrilled to see them. The weather was great and we had a terrific time together. We sent David home with an extra-large suitcase filled with our bulky winter coats and heavy sweaters.
  • Arnie spent 6 hours on Thursday May 28th getting an antibody booster infusion to top up his tank. He had his last clinic visit that Friday. We bid a fond farewell to the Lime Team and all the clinic staff. The goal of the Seattle Cancer Care Alliance is "to eliminate cancer as a cause of human suffering". We pray they achieve their goal. Words cannot adequately express our gratitude for the care, support and encouragement we received.

  • Saturday morning (May 30th) we CRAMMED everything into our car and headed north. We cruised through customs answering probing questions like: "Why is your car so loaded with stuff?" "Can't they do those transplants in Canada?" "Why don't you travel through the US to save money on gas?" "Do you have purchases totaling more than $2000.00?" After a brief stop in White Rock to visit Arnie's Uncle Paul and Aunt Luise, we continued east. We were awestruck by the beauty of the Rocky Mountains, the Alberta foothills and the Saskatchewan plains. After three full days of driving, we reached Saskatoon Monday evening (June 1st).

  • Since our return, we've had an appointment at the Saskatoon Cancer Centre with Dr. Fibich, Arnie's new transplant hematologist. We reconnected with family and friends, unpacked most of our boxes, had a visit from Brenda's parents and celebrated the wedding of Maggie & Bob.
Arnie continues to recover from his stem cell transplant, a recovery that will take a full year or more. Here are some of the ways you can help.
  • Arnie continues to be at a high risk of infection. It will take at least a year for his immune system to recover and his recovery may take even longer, depending on the medications he will need and how his new stem cells accept his old body. While he is at a higher risk of infection, he will need to pick activities that will minimize exposure to infection. Please don't visit if you have a cold or the flu. Hugs should be administered with discretion.

  • Handwashing is the most effective way to prevent infection from spreading. We were taught to wash our hands frequently. Our family and friends will be asked to do the same when visiting. Please don't be offended if we remind you to wash your hands.

  • Arnie has to follow a special diet while his immune system recovers. Please understand if he cannot share everything you have prepared.

  • Arnie will continue to experience post-transplant fatigue for some time. His energy level will have good and bad days. Please offer to visit but understand when he needs his rest.
Now we are home again, Arnie & I have decided this will be our last blog post. Thank you so much for coming along on our journey. Your thoughts, prayers, emails, phone calls, cards, notes and positive vibes made a tremendous difference to us. We were comforted and supported by the knowledge you cared. You truly made a difference in our lives. Thank you so very much. We are so grateful to know you.

Arnie & Brenda